Multiple Sclerosis Trust

Everyone needs to look after their general health, both body and mind, but this can be more important when you have been diagnosed with a long-term condition like multiple sclerosis. You can find out more about the changes in lifestyle that can help you live well with MS and make it easier to deal with symptoms and relapses, on our website.

Our day job is an important part of our identity, and being diagnosed with MS shouldn't mean giving up the things that make us who we are. But the unpredictability of MS may mean that you have to make some adjustments to how you approach work. In this guest blog, Carla, who was diagnosed with MS in 2008, suggests some simple changes you could make to help manage work life and MS. Do you have any suggestions? Let us know in the comments below.

Here at the MS Trust we like to keep on raising awareness of MS by getting you to demonstrate what it feels like to live with certain MS symptoms, as explaining MS symptoms to people who don’t have MS can be tricky! In this video, stand up comedian Will explains what its like to live with fatigue. For more information about fatigue have a look at our website: https://www.mstrust.org.uk/a-z/fatigue

Fatigue is a common symptom of MS and can have a major impact on daily life. Many people find that hot weather can make it worse. If you've been struggling in the heat, you can find some practical ideas and suggestions for managing fatigue in our recently updated publication, Living with Fatigue. Download the book for free, here: https://support.mstrust.org.uk/shop

Multiple sclerosis can be really tricky to get your head around. MSTV, the MS Trust's YouTube channel for young people affected by MS, can help you make sense of it all. You'll find videos on managing symptoms, taking care of your mental health, talking to your friends about MS, how MS makes you feel, plus lots more. Subscribe now and get clued up on all things MS 👊 www.youtube.com/mstvuk
If you'd like to be involved in any MSTV videos, do get in touch via mystory@mstrust.org.uk.

Tonight's episode of the BBC 2 series Inventing the Impossible, in which a team of inventors attempt to change the lives of three inspiring people, features a lady with MS called Susan. Susan, who lives alone, is determined to maintain her independence, and it's up to the inventors to find the accessible technology which will enable her to do so.
What technology have you found useful when it comes to dealing with some MS symptoms? Let us know in the comments below.

When Jerry Burnie joined a wheelchair basketball team four years ago, he could never have imagined just how much of a positive difference it would make to his life. "It's made the transition into a chair a positive experience rather than a negative one," he tells us.
To find out more about staying active when you have MS, visit www.mstrust.org.uk/exercise.

This World Breastfeeding Week, we look at some of the common questions mums with MS ask about childbirth and caring for a newborn baby
Got a question? Do get in touch with our Enquiry Service for information on all aspects of life with MS. The service is open Monday to Friday, 9-5pm. You can call the team on 0800 032 38 39, email infoteam@mstrust.org.uk, or get in touch via social media.

Kenny Smith is getting back in the saddle! One year from now Kenny will be on the last day of the biggest challenge he has ever undertaken, after cycling 2,655 miles (in 50 days) around the UK in memory of his sister Kathleen. This time next year would have been Kathleen's 50th birthday.
Read about Kenny's 50 day cycle around the UK for the Multiple Sclerosis Trust and find out how you can get involved at https://www.mstrust.org.uk/…/rememberin g-my-sister-a-50-day…

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. A drug which researchers hope can help with remyelination. In part three of Hellie's Clinical Trial Adventures, Hellie gets an MOT at the hospital and officially joins the trial. https://www.mstrust.org.uk/…/hellies-cl inical-trial-adventu…

'Be honest with friends about how your MS affects you day to day'
MS can be a complex condition to get your head around, and it can sometimes be tricky to get friends to understand how it affects you and your life. In this video, Sam, who has MS, offers some advice on the best ways to talk to your friends about MS. What's your advice? Let us know in the comments below #WorldFriendshipDay
Subscribe to MSTV, our YouTube channel for young people affected by MS, at www.youtube.com/mstvuk.

We would like to wish the very best of luck to the 13 MS Trust cyclists taking part in the Prudential RideLondon-Surrey 100 and 46 events on Sunday! If you are watching the event, please give a big cheer to our team in blue who have raised over £6,500 to support people living with MS today. Go team MS Trust!

MS is most often diagnosed between the ages of 20 and 40, the age at which many people may be thinking of starting, or extending, their family. For most women, MS does not make any significant difference to their pregnancy, but there are issues around medication and relapses that you may wish to consider. Have a read of our A to Z of MS for more information.
Please share your experiences of pregnancy and MS in the comments below.

"Becoming an international Para-athlete was a dream when I started and to have achieved it in such a short time has been amazing"
When Diane Green was diagnosed with progressive MS, she thought her riding days were over. But now, 17 years later, Diane and her horse Winnie have their sights set on the Paralympics in 2020.🐴🥇You can read Diane’s inspiring story below.
If you’d like to share your MS story, please do get in touch via mystory@mstrust.org.uk.

Thank you very much to everyone who has responded to our recent appeal and donated to help people access information about MS that they can trust.
"I could not imagine seeing someone in my MS clinic and not being able to refer them to the MS Trust. The MS Trust produces by far the best evidence-based information for people with MS” - Professor Gavin Giovannoni
MS is such a variable condition, no-one can know what the future will bring and what information they might need. We... provide people with MS with the resources they need, as and when they need them, to help individuals make choices which are right for them.
If you would like to donate to help this vital work continue, please visit https://www.mstrust.org.uk/appeal
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Finding it too hot to sleep?
Poor sleep is common in people with multiple sclerosis, with about 50% of people with MS reported to experience some form of sleep disturbance.
Our A to Z has some tips to help improve sleep quality😴 : https://www.mstrust.org.uk/life-ms/wellbe ing/sleep

“When I met my MS nurse everything started to make sense. I could ask the questions I wanted to: What is MS? How is it going to affect me and my life? I left my first appointment thinking, ‘I can do this; yes I’ve got this condition, but I can deal with it’” 💙
In this video we hear from Jenna about the invaluable support she's received from her MS specialist nurse Jon Maisey. Jon is based at Leicester Hospitals and was the first MS nurse to be recruited and funded as part of our pioneering Specialist Nurse Programme just over a year ago. Find out more about our work with MS nurses like Jon, and how you can support it, here: www.mstrust.org.uk/nurses.

How do you explain MS fatigue to someone? Here is Will performing a stand-up routine about fatigue as a part of our #MSTrustSymptomChallenge, which we are running on our MSTV Youtube channel. Subscribe for more videos about MS for young people! https://youtu.be/SkOh-66e4e8

After an MS diagnosis you’re bound to have worries about how the condition might impact your independence and freedom: will you still be able to do those ‘normal’ everyday things you always have done? One of the most common questions that our information team gets asked is: ‘Can I still drive?’ For most people with MS the answer is ‘Yes’, but there are some things you need to be aware of.

Whether you’re off on a European city break, a beach holiday in the Med, or heading to Butlins with the kids this summer, multiple sclerosis shouldn't stop you from enjoying a well-earned holiday with your nearest and dearest. But there may be a few extra things to think about. In our A to Z of MS, you’ll find some useful information on accessible accommodation, travel insurance, taking medication abroad and keeping cool. Let us know if you've got any tips for travelling with MS. 🏖️

this website has helped me alot it has everything you need to know on information on MS its nice to know there is a place for me as i recently got dignosed with ms and i never knew there was online forums/blogs i dont feel so alone now i know there is a place i can look for the information i require. :)

We contacted the MS Trust when my first (very bad) neurologist told me I had MS and then told me the appointment was over with no information on what I was supposed to do or help. The trust were amazing and gave us so much information and help. I'm now with a specialist MS team after their advice and would highly recommend them. Thank you for everything

This has been very helpful. Thank you for having so much information available, at a very shocking, emotional time �

They have helped us sooo much since my hubbies MS diagnosis

Received confirmation of having MS just before Christmas, now working on meds and coping with adjustments to life change. The MS trust has information that has been very helpful and supportive . I would recommend it to sufferers and also non sufferers as it gives vital information on how we can all cope living with MS.

My sister is 33 years old was told she had ms two years it getting really bad that Mt mum had to give up work to help my sister with my nephew. But her strong nature and will help her to deal with the pain she suffers and Carry's on . I am so proud of her and it not just her that suffering the family are too but we support one another and we take each day as it comes

It's so nice to see everybody supporting each other! I have had MS for 10 years now and I am now in a wheelchair however I think well that's because I feel healthy! I am happy to speak to anybody on Facebook if they would like to find out how I keep myself healthy!!

I was diagnosed in 1999 and assumed the MS society was the only source of information. I quickly became angry & frustrated with their format & attitude toward "us". Then I found the MS Trust! What a relief!! They are informative and helpful without being patronising. I've been on mailing list ever since!! Thank you "team", for years of support & information

Hi my name is Jenny I'm trying to raise funds for a machine called airnergy to help with my MS symptoms I'm getting any a ideas please xx

Hey..m 23 and diagnosis with MS...I have good days nd bad days too...ma concern is. ..it will increase or will be same...nd does it effects marriage life...??...nd does it goes to mother to child....plz help me out..thnx

Having a relapse for last 3 days Train thought isn't with me my chest feels like it's going to explode sometimes words hurt trying to find out how to get some relief don't have many people to talk to about it I don't know no one else it has it I said and if I should go to the hospital cause I hurt so bad but the hospital said they can't do nothing about it because I have no neurological

Great work done by super people ...

Met some wonderful people from the MS Trust at their London Hotel post Marathon base....



Wonderful work and long may it last ....

Everyone stick together be positive I know how difficult it is at times but the cure will be here one day

A very informative, straight down the line point of reference. Helped me come to terms with my diagnosis.

A member of our team at work has MS and I phoned the MS Trust helpline for advice and information and they were absolutely brilliant. They give fantastic advice on filling in forms and pointing you in the right direction. If you need support of any kind, don't hesitate to pick up the phone. These people do incredible work.

this website has helped me alot it has everything you need to know on information on MS its nice to know there is a place for me as i recently got dignosed with ms and i never knew there was online forums/blogs i dont feel so alone now i know there is a place i can look for the information i require. :)

We contacted the MS Trust when my first (very bad) neurologist told me I had MS and then told me the appointment was over with no information on what I was supposed to do or help. The trust were amazing and gave us so much information and help. I'm now with a specialist MS team after their advice and would highly recommend them. Thank you for everything

This has been very helpful. Thank you for having so much information available, at a very shocking, emotional time �

They have helped us sooo much since my hubbies MS diagnosis

Received confirmation of having MS just before Christmas, now working on meds and coping with adjustments to life change. The MS trust has information that has been very helpful and supportive . I would recommend it to sufferers and also non sufferers as it gives vital information on how we can all cope living with MS.

My sister is 33 years old was told she had ms two years it getting really bad that Mt mum had to give up work to help my sister with my nephew. But her strong nature and will help her to deal with the pain she suffers and Carry's on . I am so proud of her and it not just her that suffering the family are too but we support one another and we take each day as it comes

It's so nice to see everybody supporting each other! I have had MS for 10 years now and I am now in a wheelchair however I think well that's because I feel healthy! I am happy to speak to anybody on Facebook if they would like to find out how I keep myself healthy!!

I was diagnosed in 1999 and assumed the MS society was the only source of information. I quickly became angry & frustrated with their format & attitude toward "us". Then I found the MS Trust! What a relief!! They are informative and helpful without being patronising. I've been on mailing list ever since!! Thank you "team", for years of support & information

Hi my name is Jenny I'm trying to raise funds for a machine called airnergy to help with my MS symptoms I'm getting any a ideas please xx

Hey..m 23 and diagnosis with MS...I have good days nd bad days too...ma concern is. ..it will increase or will be same...nd does it effects marriage life...??...nd does it goes to mother to child....plz help me out..thnx

Having a relapse for last 3 days Train thought isn't with me my chest feels like it's going to explode sometimes words hurt trying to find out how to get some relief don't have many people to talk to about it I don't know no one else it has it I said and if I should go to the hospital cause I hurt so bad but the hospital said they can't do nothing about it because I have no neurological

Great work done by super people ...

Met some wonderful people from the MS Trust at their London Hotel post Marathon base....



Wonderful work and long may it last ....

Everyone stick together be positive I know how difficult it is at times but the cure will be here one day

A very informative, straight down the line point of reference. Helped me come to terms with my diagnosis.

A member of our team at work has MS and I phoned the MS Trust helpline for advice and information and they were absolutely brilliant. They give fantastic advice on filling in forms and pointing you in the right direction. If you need support of any kind, don't hesitate to pick up the phone. These people do incredible work.

this website has helped me alot it has everything you need to know on information on MS its nice to know there is a place for me as i recently got dignosed with ms and i never knew there was online forums/blogs i dont feel so alone now i know there is a place i can look for the information i require. :)

We contacted the MS Trust when my first (very bad) neurologist told me I had MS and then told me the appointment was over with no information on what I was supposed to do or help. The trust were amazing and gave us so much information and help. I'm now with a specialist MS team after their advice and would highly recommend them. Thank you for everything

This has been very helpful. Thank you for having so much information available, at a very shocking, emotional time �

They have helped us sooo much since my hubbies MS diagnosis

Received confirmation of having MS just before Christmas, now working on meds and coping with adjustments to life change. The MS trust has information that has been very helpful and supportive . I would recommend it to sufferers and also non sufferers as it gives vital information on how we can all cope living with MS.

My sister is 33 years old was told she had ms two years it getting really bad that Mt mum had to give up work to help my sister with my nephew. But her strong nature and will help her to deal with the pain she suffers and Carry's on . I am so proud of her and it not just her that suffering the family are too but we support one another and we take each day as it comes

It's so nice to see everybody supporting each other! I have had MS for 10 years now and I am now in a wheelchair however I think well that's because I feel healthy! I am happy to speak to anybody on Facebook if they would like to find out how I keep myself healthy!!

I was diagnosed in 1999 and assumed the MS society was the only source of information. I quickly became angry & frustrated with their format & attitude toward "us". Then I found the MS Trust! What a relief!! They are informative and helpful without being patronising. I've been on mailing list ever since!! Thank you "team", for years of support & information

Hi my name is Jenny I'm trying to raise funds for a machine called airnergy to help with my MS symptoms I'm getting any a ideas please xx

Hey..m 23 and diagnosis with MS...I have good days nd bad days too...ma concern is. ..it will increase or will be same...nd does it effects marriage life...??...nd does it goes to mother to child....plz help me out..thnx

Having a relapse for last 3 days Train thought isn't with me my chest feels like it's going to explode sometimes words hurt trying to find out how to get some relief don't have many people to talk to about it I don't know no one else it has it I said and if I should go to the hospital cause I hurt so bad but the hospital said they can't do nothing about it because I have no neurological

Great work done by super people ...

Met some wonderful people from the MS Trust at their London Hotel post Marathon base....



Wonderful work and long may it last ....

Everyone stick together be positive I know how difficult it is at times but the cure will be here one day

A very informative, straight down the line point of reference. Helped me come to terms with my diagnosis.

A member of our team at work has MS and I phoned the MS Trust helpline for advice and information and they were absolutely brilliant. They give fantastic advice on filling in forms and pointing you in the right direction. If you need support of any kind, don't hesitate to pick up the phone. These people do incredible work.