Challenging Behaviour Foundation

The #CBNSG is taking place next week. The Challenging Behaviour National Strategy Group is a multi-stakeholder group of learning disability experts (families & professionals) who meet twice a year to discuss key issues and work on individual, collective and organisational actions to improve the lives of children, young people and adults with learning disabilities whose behaviour challenges. You can get involved by becoming an associate member and receive regular updates on the work of the CB-NSG by signing up to the challenging behavior charter: https://lght.ly/n8n8dog

Today the Care Quality Commission released its report Promoting Sexual Safety Through Empowerment.
Whilst we welcome the CQC’s attention on improving sexual safety, we are especially concerned for individuals with severe learning disabilities who are often non- verbal and who are particularly vulnerable.
CQC has an opportunity now to champion sexual safety and should use its power and influence over other parts of the system to co-ordinate and drive the change required.
... See our response here: http://bit.ly/CQCSSreport
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The Challenging Behaviour Foundation is working as part of a larger collaborative with Respond, The Tizard Centre and Three Cs to provide NHSE with a report and specification on trauma support for families of children and adults with learning disabilities and/or autism. There are three main components to this project; the CBF is working on the first component which is research into what trauma support already exists, families’ experiences and what they think would help. Fam...ilies who have worked to put together the questionnaire have said : “Trying to find a way to get the right support and appropriate services, as family carers, can often be incredibly difficult and very stressful. We need the people making decisions to understand this and better support us. If you are able to contribute in any way to this questionnaire, we will do everything we can to make sure your challenges are understood and help shape future support.”
Please help us by filling out our Trauma Support Questionnaire and sharing with other family carers.
https://www.surveymonkey.co.uk/r/Trauma_S upport
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Children and adults with learning disabilities and autism remain in inappropriate services, often far from their homes, because the Transforming Care programme has not delivered what was promised in 2012. These individuals and their families are living with the consequences of this failure, as highlighted by today’s data showing that incidents of restrictive interventions have increased, with 805 incidents on under 18s, including 80 incidents of prone restraint.
It is clear ...that another target – set by the government itself, and the lowest end of it – will be missed again. In light of recent legal challenge by EHRC against the Department of Health and Social Care, it is time for a new approach, focussed on investment in community support and action to protect the human rights of children, young people and adults with learning disabilities and autism.
See our statement at: http://bit.ly/CBFTCJan
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This year we have two people running in the London Marathon for the CBF, Carina and Ben. Stay tuned for updates on their training and progress, plus ways you can support them.
Carina has unfortunately been injured so (much to her dismay), missed out on training during the storms! She'll resume training again this week.

Paul Streets’, CEO of Lloyds Bank Foundation for England & Wales (who fund our family support worker), recently visited the CBF along with our grant manager. His article below highlights the work of #smallbutvital charities, and talks positively about the work and impact of the CBF. Our family and volunteer networks are described as emotional, technical and practical. It is a real team effort and we would like to thank all our volunteers for their help and amazing families for supporting each other.
https://www.thirdsector.co.uk/paul-street s-challe…/…/1672899

Today the Equality and Human Rights Commission (EHRC) launched a legal challenge against the Secretary of State for Health and Social Care over the repeated failure to move people with learning disabilities and autism into appropriate accommodation. For the CBF statement and EHRC announcement please see: https://www.challengingbehaviour.org.uk/‚ Ķ/ehrclegalchalleng‚Ķ

Today we have published a report which provides an update to the Reducing Restrictive Intervention of Children and Young People report jointly produced by the CBF and PABSS in January 2019. The case study findings indicate a number of potential issues around the use of restrictive interventions in schools for children and young people with a range of developmental, educational, physical, and mental health needs.
For our full statement and link to the report please see: https://lght.ly/nd8l81 #NoHarm

On 10th February a report will be launched at the House of Lords, which draws on the experiences of over 700 families of children with disabilities who have experienced restrictive interventions. This has been driven by families, using data collected by PABSS. A range of families, charities and organisations have worked together to highlight the issues in the absence of formal recording or reporting. The report covers the number of restraints and seclusions; recording and rep...orting; the reasons given for interventions, and the types of injuries children and young people suffered as a result. It exposes the harm being caused and highlights the need for urgent action - we know how to support children well, and we know that it is perfectly possible to do this successfully. #NoHarm
For more information and to keep up to date about the launch please visit http://bit.ly/RRISC
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Make us your Valentine!By clicking through Give as you Live before ordering 💌 cards, 🎁 gifts, 🌹 flowers and 💝 chocolates from over 4,300 retailers you'll earn FREE donations for us! Start raising free funds for us and spread the love this Valentine's Day http://bit.ly/GAYLCBF

Independent Review into CQC regulation of Whorlton Hall The CQC has published its Independent Review by David Noble QSO into the regulation of Whorlton Hall (full report here: http://bit.ly/CQCWHReview). The review examined why a 2015 inspection report which rated the service as ‘requires improvement’ was not published. It also covers the treatment of key whistle-blowers (including the chief inspector of the 2015 inspection) who raised concerns before the May 2019 Panorama do...
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This week is #CervicalCancerPrevention Week. Beyond Words have produced a leaflet 'An Easy Guide to Cervical Screening' to prepare a woman with learning disabilities for a smear test #CervicalScreening
Available to download for free http://bit.ly/BWdownload

Government and NHS at risk of missing Transforming Care targets according to data released from NHS Digital. The data provides little evidence of the transformation of care that has been promised for so long. 2,185 people with a learning disability and/or autism remain locked away in inpatient units, a reduction of just five in December. Each number represents a person, and when this is combined with the woefully incomplete data about the use of restrictive interventions it highlights what those individuals are experiencing.
It is time the Government showed real leadership and addressed the root causes of the systemic failures.
For our full statement and infographic: http://bit.ly/CBFDec19

Help shape our new website! We are redesigning our website and would love users' feedback for our current site. This will help us ensure our new website suits everyone’s needs.
We have prepared a short survey (https://lght.ly/43o9o0l, a link is also available to the survey on our website) that should only take 5 minutes to complete. We would be grateful if you could complete this if you have time.
... Any feedback would be appreciated, we will be running this survey until the end of January.
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The @CareQualityComm have published a damming report of Cygnet Health Care Ltd. Read the CBF response and find links to the report and CQC statement here: http://bit.ly/CBFCygnet.