Hemiplegic Migraine Society

So true im like a walking weather forecast !!

My first attack was 10/15/16

I m glad to see others like me!

Iv been recently diagnosed seeing this page makes me realise I ain't the only one I have suffered it for 2 years now and it seems to have come back again after having its 6 month break but probably one of the worst things to happen to people...

I've been suffering for almost three years after being a migraine sufferer all my adult life. I had a significant stroke when I was 7 years old that has left me with a sizeable scar on my brain. After being taking in to hospital again two weeks ago and treated appallingly. I was having up to five attacks in an hour! We have been forced to go private and seen Dr Pater Bradbury in London. He believe the very first of these new migraines was triggered by my age, now being 47, he also believes that there is an epileptic side to these being caused by the scar. I'm having up to five attacks daily, I'm on Gabapentin but an extremely low dose. Not a lot scares me but loosing control of everything does. I feel like I'm 7 years old again laying in the school playground! I've faced a lot but this is the most scared I've been in a very long time. I loose all mobility down the left hand side and have no speech and my mouth turns and sometimes I see double. I can't use my right arm due to the stroke and have an extremely weal leg. These migraines are wiping me out. I would be most grateful for any tips, I am keeping a journal and there doesn't seem to be any triggers. Thank you for reading, I very much appreciate it and any help given. Take care all you and be safe. Xxxx

I have just been diagnosed with hemiplegic migraine and oh boy it's knocked me for 6 I have had 3 attacks in the last month I was in hospital for over a week I am waiting to go back and see the neurologist I really feel for anyone who suffers from this illness I wouldn't wish this on anyone I feel so tired and i I am struggling with my balance just want to get my life back on track and get back to work xxx

I had my first attack on the 1st of November 2014 it was one off the most scariest things that's ever happen to me and it's helped me knowing that I'm not allow

I am new to.the site but it helps knowing I am not alone. Also I have all the same symptoms and most of you with the exception the my left side is affected. I have on several med combinations to help control it. I am still having at least 3 a day.

It great to find a place where people understand the same frustrations and struggles. HM interrupts so much. I failed all meds and Botox injection have made a difference so far but not 100%. I still miss me that I was

Im passing forma a hard time with this Aslo im hemiplegic Aslo how can i join your group

I've been suffering with Hemiplegic migraines since year 8 I am now nearly 20, I find them so scary, my stages go my complete right arm going numb and pins and needles then I know it's coming on, then my inside of my faces goes numb into my tongue and throat, I then lose my speech find it hard to put words together and think of the most simplest of things, for example I had one last night and I couldn't remember how to turn my bedroom light off for ages I couldn't work it out, I then will be sick and then the migraine comes and it's so painful! I was wondering if there's are medication I can ask my gp for

I just recently got diagnosed with hemiplegic migraines on jan 29th I have been taking a medication for its a time release capsule I'm hoping and praying it works it is called verapamil I have more bad days and good days I am trying to keep a journal when I have bad days today is not so bad Saturday I had a decent day a good day I should say sunday was okay today who knows I always have the pressure still using my cane to help balance myself cuz I'm so off balance speech is better until the episode occurs I have blurred vision to my right I don't know if it'll come back I hope and pray it does numbness and tingling to my right hand weakness to the right side pretty much it

I've had them since I was 12.and like Renee meds. Slow them down some but always seem to find a way and stop the meds from helping at all.

Besides that it sad but a relief to find this site.I'm not alone in this.

I suffer from these type of migraines