About Ibd Nixon Twin And Multiplex Registry
The IBD Nixon Twin and Multiplex Registry is an International project with the aim of enhancing our understanding of Crohn's Disease and Ulcerative Colitis
Ibd Nixon Twin And Multiplex Registry Description
The IBD Nixon Twin and Multiplex Registry is an International research project with the aim of enhancing our understanding of Crohn's Disease, Ulcerative Colitis and Indeterminate Colitis. Our ultimate goal is to learn more about Inflammatory Bowel Disease such that we can develop new strategies for prevention, early diagnosis and management of these debilitating conditions.
The registry is led by a team of gastroenterologists with a specialist interest in caring for patients with Inflammatory Bowel Disease. Dr Marcus Harbord leads the UK branch of the registry and Prof Siew Ng leads a similar registry in Hong Kong. As well as providing fantastic clinical care, both were keen to develop a longstanding research resource to help understand more about why these diseases develop. Both have an extensive record of publishing in this area.
Back in the 1990s a team of researchers at the Royal Free Hospital lead by Prof Pounder put together a database of UK twins with Inflammatory Bowel Disease. The database was rediscovered in 2010, at which point Dr Marcus Harbord took over its upkeep. It was at this point the value of having an up to date twin registry was realised. As such we are contacting twins within the original database as well as recruiting new twin pairs and multiplex families.
If you are a twin with IBD, from a Multiplex family or would simply like more information about the registry we would love to hear from you.