Lupus Trust

All our information video's we put on this page are now also on our youtube channel, so you can find them easily if you want to watch them again or share the information.
Click below to go to our channel.
#lupus #lupustrust #video #youtube

Happy Friday!! 😂🤣
#lupus #lupusawareness #lupustrust #friday

An important issue, so sharing incase anyone would like to sign it. 👍
#lupus #lupusawareness #lupustrust #carers

Patients with systemic lupus erythematosus (SLE) are susceptible to herpes simplex virus (HSV) infection, which occasionally leads to severe complications including meningoencephalitis and keratitis.
#lupus #herpessimplex #lupusresearch #lupustrust

Tune in to Loose Women on ITV tomorrow at 12.30, as our lovely Kelle Bryan will be appearing! 😀
#lupus #lupusawareness #lupustrust #loosewomen #kellebryan

Toni Braxton gets candid about battling lupus on tour, saying she has ‘maybe 300’ bad days a year.
#lupus #lupusawareness #lupustrust #tonibraxton

The New York attorney general, Letitia James, has filed a lawsuit against a Manhattan stem cell clinic and the physician running it for allegedly selling unproven treatments for lupus and other autoimmune conditions.
Click on link below for further information.
#lupus #lupustrust #stemcells

Incase you missed it Operation Live last night was a kidney transplant. Father Daniel, supplies his son Eugene, 33, the organ after he suffered kidney failure caused by Lupus Nephritis.
Click below to watch online or the episode is available on catch up tv.
#lupus #lupusnephritis #kidney #kidneyfailure #operationlive #channel5

🙄😕
#lupus #lupusawareness #lupustrust

A study of pregnant women with SLE has identified early changes in the RNA molecules present in the blood that could be used to determine the likelihood of them developing preeclampsia.
The study, which is published in the Journal of Experimental Medicine, may also help researchers develop treatments to prevent other pregnancy complications associated with lupus, including miscarriage and premature birth.
Lupus carries an increased risk of developing complications during preg...nancy; approximately one fifth of pregnant lupus patients develop problems ranging from preeclampsia to fetal death and preterm delivery.
#lupus #lupusawareness #lupusresearch #pregnancy
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I have had a message from Sue (below) asking if anyone else is experiencing the same problems as she is having with her child's school. If you have a child with a chronic condition/disability you may be interested in getting in touch with Sue via her e-mail at the end of her message:
"I would like to reach out to parents/carers and their children who are at school in the UK who feel they are being pressurised by the school to send their child in when they feel they are still ...unwell.
Every year since nursery, my child is now in Year 4, I have a showdown with the headteacher. We have provided ample information about their long term illness, viral induced-asthma, hospital visits, consultants and every year we think that we have provided enough information but no, because he is more than 10% absent they should be sent in sick or we must obtain a medical verification, but again for every absence.
Are there any other parents that have experienced heavy handedness with their child having a long term illness being a persistent absentee or many days off but not considered by the headteacher to have an illness so disbelieving their time off, not willing to authorise etc.
Or any parents with disabled children who believe the school starts to become a nanny state, wanting to get involved with the hospital consultants, school nurse etc and forcing the child back to school when still unwell against the parents wishes or the child's? I am referring to children with long term illness so e.g., asthma that requires hospital admissions regularly or perhaps ADHD, or other long term illnesses which are considered Special Education Needs (SEN).
Could any parents with experience of these problems please contact me at suz2017@icloud.com. All correspondence will be treated with the strictest confidence and not distributed unless approval given as per GDPR guidelines".
Thanks Sue
#lupus #lupusawareness #chronicillness
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I always have such great plans! 🙄
#lupus #lupusawareness #lupustrust

Has anyone had any luck getting life insurance with lupus? I know of travel insurance companies, but life insurance seems to be more difficult.
Do you have any names of companies you can recommend that are willing to insure lupus patients?
Thanks. 👍
... #lupus #lupusawareness #lupustrust #lifeinsurance
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Happy Monday, hope you have a great week.
#lupus #lupusawareness #lupustrust #butterfly

I wish people would stop taking my photo!! 😂🤣
#lupus #lupusawareness #lupustrust #nap

Yep, but it's worth it! Have a relaxing Sunday. 🙂
#lupus #lupusawareness #lupustrust #sunday

Happy Saturday!!! 😂🤣
#lupus #lupusawareness #lupustrust #gym

As you kow 9 out of 10 patients with lupus are female and new research on the X chromosome from the School of Veterinary Medicine points to an abnormality in the immune system’s T cells as a possible contributing factor in lupus and other autoimmune diseases.
#lupus #lupusresearch #lupustrust

Even before brain fog this was me and definitely me now!! 😂🤣
#lupus #lupusawareness #lupustrust #brainfog #friday

Ya fantastic hospital they have defo helped me at the Louise Coote lupus unit xx

The best care in the world both Drs but especially the nurses, Kay Blackhall, you are the best thank you.

Id be so lost without having these as help and knowing that its not just me being pathetic. .. Thank you xoxox

Dedicated to finding a way through...St Thomas Lupus Trust leads the way!

Always in good company with people who understand!

A GREAT place for help & advice. Really appreciate the work St Thoms' & Guys do to help Lupus sufferer's. Thank you for making my fight with Lupus easier.