Spina Bifida • Hydrocephalus • Information • Networking • Equality - Shine
Tuesday: 09:00 - 17:00
Wednesday: 09:00 - 17:00
Thursday: 09:00 - 17:00
Friday: 09:00 - 17:00
Saturday: -
Sunday: -
About Spina Bifida • Hydrocephalus • Information • Networking • Equality - Shine
Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and /or hydrocephalus, as well as to parents, families, carers and professional care staff. Shine enables people to get the best of life.
Spina Bifida • Hydrocephalus • Information • Networking • Equality - Shine Description
Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and /or hydrocephalus, as well as to parents, families, carers and professional care staff. Shine enables people to get the best out of life.
Want to join us? Become a Shine Member at www. shinecharity.org. uk /membership (it's free to join! )
HOUSE RULES
To help create an open and inclusive experience for users of this Shine Facebook page we ask that you observe the following house rules:
- This page is aimed at users from the community, Shine members and stakeholders.
- You will not submit information that is, or is likely to be, discriminatory, hateful, false, inaccurate, threatening, defamatory, abusive, obscene, indecent, seditious, offensive, pornographic, harassing, profane, sexually oriented, invasive of a person's privacy, liable to incite racial hatred, menacing, scandalous, inflammatory, blasphemous, in breach of confidence, or which may cause annoyance or inconvenience or otherwise be a breach of the law.
- You will show respect and courtesy at all times to other users.
- You will not use copyrighted material unless the copyright is owned by yourself or you have obtained all necessary licenses and /or approvals.
- You will not carry out or encourage conduct that would be considered a criminal offence, give rise to civil liability, or otherwise be contrary to the law or infringe the rights of any third party, in the UK or any other country in the world.
- You will not make any postings that would constitute chain letters, pyramid schemes or other forms of solicitation.
- You will not use the page for making any overtly party political statements, or for electioneering purposes.
- You will not post content that violates any copyright.
- You will not make a posting that would be technically harmful (including without limitation hacking, the introduction of computer viruses, Trojan horses, worms, harmful components, corrupted data or other malicious software).
- You agree not to use the page for spamming.
- You will use your real name and not adopt a user name which is inappropriate or offensive.
- You agree that you use this page at your own risk and that the site owners are not responsible for any of the material posted.
- Any posting only gives the views of the author of the posting and does not reflect necessarily the views of Shine and therefore you agree that we cannot and will not be held responsible for the contents, accuracy or validity of the postings in any manner whatsoever.
- You agree that you are solely responsible for the content of your postings.
- You agree that Shine will remove any material it chooses entirely at its discretion and without prior consent of the author.
- You agree that the responsibility for your postings rests solely with yourself and you will indemnify Shine in respect of any costs, expenses, losses, damages or claims made as result of any claim based upon any posting made by yourself.
- You agree that Shine is not obliged to oversee, monitor or moderate postings.
If you consider that any posting breaches these terms, please let us know by emailing us at firstcontact@shinecharity.org. uk and we will try to remove the postings within a reasonable time.
Reviews
Get involved & Shine! 6 weeks to go... FUN & FREE activity day hosted by Shine and the University of Bedfordshire. Open to all members and their family and friends, but places are limited. To secure your place please visit our Eventbrite page. https://www.eventbrite.co.uk/e/get-involv ed-shine-registrat…
Have you registered for Shine Health Direct? Exclusive to Shine members it's the largest dedicated home delivery service for people with Spina Bifida. Visit www.shinehealthdirect.org for more information.
Are you a musician struggling to access quality facilities? You're not alone!
Mystery Jets Official frontman Blaine Harrison encourages this music industry to stand up and support disabled artists in a recent interview with NME
CALLING THE COMMUNITY...
A parent of a young person with Spina Bifida has been in touch, and would like email contact with anyone whose child has had a bladder augmentation.
If you would be willing to help, please email gill.yaz@shinecharity.org.uk to discuss.
Shine professionals are amongst the very best in the field and one of our unsung heroes, Occupational Therapist Kathy Allen, is featured in the latest edition of specialist publication, The OT Magazine.
If you're in need of advice, contact your Support and Development worker who can make a referral on your behalf, or email Kathy at the address included in the article.
We're very interested to tune into The Jeremy Vine on BBC/Radio 2 at 12:00pm today. Spina Bifida is listed amongst the talking points. Will you be listening?
Tune in here, or listen on catch up shortly after broadcast.
She's a BAFTA Breakthrough Brit, presenter of BBCHorizon's eye opening documentary 'Spina Bifida and Me' and tonight, Ruth Madeley stars in BBC One's hotly anticipated drama Years and Years.
Get to know her, courtesy of Stylist or meet her in person at our second annual Charity Ball this September. Tickets on sale now, available from Shine Fundraising
We've been working closely with our delivery partner to address member feedback and are delighted to announce the launch of our new look home delivery service. Welcome to Shine Health Direct - stay tuned this week for further details, or visit www.shinehealthdirect.org
Shine are grateful to Stuart McDonald MP for raising the issue of fortification at Minister's Health Questions earlier this week.
We were delighted to hear Seema Kennedy pledge to launch the long promised consultation into fortification of flour with Folic Acid before the summer.
Following that commitment, Shine, together with a who's who of the country's leading experts, write to the Minister for Public Health today, urging her to deliver on this promise.
... A huge thank you to our friends and colleagues at the following organisations for their ongoing support in our fight for fortification.
Spina Bifida Hydrocephalus Scotland Tommy's Royal College of Obstetricians and Gynaecologists RCOG Nutrition Society Medical Women's Federation British Dietetic Association British Nutrition Foundation and British Association of Perinatal Medicine
Not to mention the sterling work of Nigel Dodds and Owen Smith MP who've worked so hard to keep fortification high on the agenda.
See More
Regular 'Googlers' will be aware of the daily Google Doodle. Today's is especially interesting, paying tribute to Lucy Willis, a pioneering scientist instrumental in the discovery of Folic Acid.
Learn how Marmite played a huge role in her discovery, and why Shine is now firmly in the 'Love it' camp!
For all the latest updates from the International Federation for Spina Bifida and Hydrocephalus, register to receive their monthly newsletter.
You can view April's edition online now, just click the subscribe button at the top of the page to receive future editions directly into your inbox.
As we call time on another Folic Acid Awareness Day, we'd like to thank all of you for your comments, likes and shares today, and to leave you with these three important reminders.
Tag a friend, and spread the word. Let's get this well kept secret out in the open.
Even the most careful couples can find themselves expecting a baby they hadn't planned for. It doesn't matter whether you're actively trying, or trying to avoid becoming pregnant, watch our video to see why you ought to start preparing now.
So why are we appealing for you to start taking Folic Acid? Simple.
Taking a daily 400mcg supplement has been clinically proven to reduce the chances of a neural tube defect developing during pregnancy.
"...but I'm not trying for a baby"
... We know, but Folic Acid takes time to work and 40% of UK pregnancies are not planned. This simple, convenient and affordable precaution can help to prevent Spina Bifida and Anencephaly which develop within 28 days of conception, long before many realise they are pregnant.
See More
Contraception is not 100% effective, and taking the contraceptive pill has been shown to reduce folate levels in women, meaning you'd need to allow time to correct that deficiency if you decide to start trying for a baby. So, basically, what we're saying is...
We protect everything that's important to us...
http://ow.ly/OIZ250tweu4
How reliable is your contraception? The results might surprise you!
Watch our video to discover why if you're sexually active, you need to be taking an extra precaution.
More about Spina Bifida • Hydrocephalus • Information • Networking • Equality - Shine
Tuesday: 09:00 - 17:00
Wednesday: 09:00 - 17:00
Thursday: 09:00 - 17:00
Friday: 09:00 - 17:00
Saturday: -
Sunday: -