Yorkshire Fatigue Clinic

Moving photos from Sheffield's #MillionsMissing event. For those with ME/CFS that organised and attended these worldwide events we hope your recovery from being at the rallies will be swift. Although there is a strong community of people with ME/CFS who appreciated your efforts, we know your bodies will not have and will be letting you know this over the days/weeks to come. Rest, be kind to yourself and be proud of what you've achieved. Your voice is being heard. #postexertionalmalaise

What photo would you use to show what ME/CFS looks like?

There have been many inspirational messages of hope and solidarity that have filled news feeds this ME awareness week. However, there have also been some very distressing images which may have upset some. If you need some one to talk to then please contact these numbers. They're there to listen. https://www.facebook.com/635207136503250/ posts/1989174237773193/

This remains one of our most popular posts which is still relevant today....

Today is ME awareness day. We support those who are joining together today to raise the profile of the illness and the need for more biomedical research into this misunderstood condition. 250,000 people in the UK suffer with an illness that some medical professionals still refuse to acknowledge, a condition for which many will never be offered any specialist care or support. It is a condition that can leave adults and children confined to bed for weeks/months/years/decades; s...truggling to hold on to the hope of recovery when faced with isolation, disbelief and a lack of treatment options. It is a condition that forces people out of work or education, renders them unable to do much loved hobbies or to see the friends and family they love. It causes unremitting fatigue and exhaustion and an array of symptoms that affect daily function, including the simplest tasks many take for granted. Today all those who have ME or care for someone with this condition are in our thoughts. You remain inspirational!
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Many of the #MillionsMissing awareness events took place across the world today in advance of ME awareness day tomorrow. Well done to all in Sheffield who represented Yorkshire and the 25% who are bed bound and house bound and need their story to be told.

Well done to all involved!

If you know someone with severe ME you may wish to nominate them for this special surprise.

Action for ME are looking for feedback...

This illness is only invisible if you do not take the time to look. Katie's mum shares her story on what it's like to watch her daughter live with ME.

Gary writes about the challenges and the importance of rest when you have ME. https://zonked.club/2019/02/28/give-it-a- rest/

We we honoured to be asked to contribute to this show. For anyone who wishes to listen it can be found at: https://player.fm/se…/the-me-show/episo de-five-sue-pemberton .

If anyone is interested or knows someone who maybe, York Inset Scooter Club are raising money for a good cause, York ME Community group.

Beyond inspirational! Simon has ME and Parkinson's Disease but was determined to find a way to keep writing. It's certainly paid off!

For anyone who’s interested and hasn’t got it, Fighting Fatigue: a practical guide to managing the symptoms of CFS/ME,edited by Sue Pemberton and Catherine Berry is currently in the amazon sale so only £1.79 on kindle. https://www.amazon.co.uk/…/ref=pe_15129 1_350590511_pe_a4x…/…