Association For Multiple Endocrine Neoplasia Disorders - Amend

Just added! AMEND Regional Meeting for #Yorkshire. Join our volunteer, Emily at this free and friendly event on Saturday 19th January 2019. Book now! https://www.amend.org.uk/patients/support /…/regional-events/

It may seem too early to mention the 'C' word but you know it's coming and the final postal date will creep up on you. So get organised and order your cards now! https://www.amend.org.uk/product/christma s-cards-pack-of-4/

A local get-together for any affected by MEN, SDH or ACC. Facilitated by AMEND's trained Regional Volunteer for Yorkshire, Emily Fazal. Come along and meet others in a friendly and informal atmosphere. AMEND resources will be available to view and take away. Refreshments provided.

It's good to talk, so let's talk about NETs! Get involved in raising awareness this NET Cancer Day on November 10th by holding a coffee morning with friends, family or colleagues. Order our free box of goodies by the end of October to help you. #netcancerday https://www.amend.org.uk/…/net-cancer-d ay-coffee-club-box-…/

Many of you will be eligible for a free shot. Protect yourself and others

Get involved! Raise awareness! https://www.amend.org.uk/net-cancer-day-c offee-club/

Our members love our events! They are a great opportunity to meet others in similar situations for peer support. We run a large annual Information Day and regular Regional Events around the UK. Check our why, when and where on World Mental Health Day #worldmentalhealthday here: https://www.amend.org.uk/patients/support /events/

Social Media can be a great source of support. AMEND sends a link to our private Facebook Group for patients when you join. Learn more here on World Mental Health Day #worldmentalhealthday https://www.amend.org.uk/patients/support /social-media/

If things are getting on top of you, why not try #Mindfulness? AMEND developed some free resources and podcasts so give them a try this World Mental Health Day. "Mindfulness can help us become aware of the choices we make in life, and make changes if we want to. By paying attention (through formal and informal practice) to our thoughts, feelings and body sensations we can better notice our responses to things, become more self-aware and able to manage our lives, emotions and circumstances positively." #worldmentalhealthday https://www.amend.org.uk/mindfulness/

AMEND provides a free Counselling Service for our registered members. Consultant Clinical Psychologist, Kym Winter heads the service and is involved in many other aspects of our work too. #worldmentalhealthday https://www.amend.org.uk/patie…/support /counselling-service/

Our support services are available to carers too. #worldmentalhealthday

Living with a rare condition can be challenging when you can't be sure what the future holds for you and your family. Our Publication, 'Living with Uncertainty' can help on World Mental Health Day #worldmentalhealthday https://www.amend.org.uk/…/liv…/livin g-with-uncertainty.html

Being diagnosed with a rare disease can be traumatic. Read our publication, 'Dealing with Diagnosis' for help on World Mental Health Day #worldmentalhealthday https://www.amend.org.uk/…/deal…/deal ing-with-diagnosis.html

Today is World Mental Health Day #worldmentalhealthday. Read our CEO's earlier blog on 'Wellness - and Cancer Bashing'. "Unresolved grief and anger must not be used to make others feel small, insignificant and guilty." https://jogreyblog.wordpress.com/

A free event for patients, family and friends affected by #MEN1, #MEN2A, #MEN2B, #FMTC, #MTC, #ACC, #SDHx conditions. Small and friendly event with refreshments

Last 2 days to book your tickets to our Regional event for #Leicestershire this coming weekend! Book now to avoid disappointment. https://www.amend.org.uk/patients/support /…/regional-events/

The pituitary gland can be found at the base of the brain behind the nose, in a bony box called the sella turcica . It is very close to the optic nerves from the eyes and therefore, occasionally pituitary growths can cause problems with vision. They may also cause headaches. 3 out of 10 (30%) of MEN1 patients will develop a pituitary growth. https://www.amend.org.uk/patients/informa tion/men-1/ #OctoberPituitaryMonth #PituitaryAwareness

"Transition is a process, not a single event, and it takes time, planning, support, and children’s and adults’ services working together" A excellent patient's perspective of transition from paediatric to adult services. https://www.bmj.com/content/362/bmj.k3886

The level of support is outstanding and the charity works tirelessly to help all affected by MEN, not just those with the condition. Without AMEND and the Facebook groups in particular, we would feel isolated, and confused by this rare condition as finding non-medicalised information is difficult, but the information booklets written by Jo and other specialists are a valuable resource. Thank you for all that you do to help us feel like we are not alone, but part of a very understanding and very special family <3

The Annual Conference was an excellent weekend. It was very informative and also fun. Thank you Helen and all the hard working team. (Carol`s sister).

So happy I've found this amend is the charity for my illness an they have been a great help.

Iv have been diagnosed with men 1 since 2007 I have all three tumors but I still don't really understand the condition so I'm hoping this group will help me understand

In love with this site. They are so knowledgable, caring, loving,understanding and friendly. The AMEND SITE is always up to date and ready to answer any questions I may have. I feel like I'm talking to family. Don't know what I qod have done without them.

I was so surprised that there was a group on Facebook for pheochromocytoma and Paraganglioma. My husband had a pheochromocytoma at 14 yrs old. Almost 50 yrs later he has a Paraganglioma on his chest wall! Had surgery on 1/12 now we start radiation therapy. It’s so great to read about this disease.

I recieved my pack through this morning. Brilliant is all i can say. So much information, which made so much sense. Thank you x