Childhood Eye Cancer Trust (Chect)
About Childhood Eye Cancer Trust (Chect)
A UK charity dedicated to helping people affected by retinoblastoma. We provide support, raise awareness and fund research.
Childhood Eye Cancer Trust (Chect) Description
The Childhood Eye Cancer Trust (CHECT) is a UK charity dedicated to helping people affected by retinoblastoma, a rare form of eye cancer. We:
• Provide support and information to families and individuals.
• Fund research into the prevention and treatment of retinoblastoma.
• Raise awareness among health professionals and the public.
• Influence policy to improve services for patients.
We know that when a child is diagnosed, it can be a distressing and frightening time for everyone, and we are here to help. We also understand that for some people retinoblastoma can have a long term impact and we offer lifelong support for anyone affected – from diagnosis to adulthood.
We’ve been helping families for nearly 30 years but we don’t receive any money from the government and we rely on public support to fund our vital work.
Reviews
Retinoblastoma and me – check out our information area, written specifically for children and young people: https://buff.ly/2aVNMTv
When you're looking through all the lovely photos you took of your children or grandchildren over Christmas, you might see a white glow in their eye.
Most of the time this is completely harmless, but very occasionally it might be a symptom of something more serious. Find out what causes white eye and what to do if you spot it here: https://chect.org.uk/about-retinoblastoma -2/whiteeye/
As the year draws to an end, it’s a time when we like to look back and reflect on what we’ve achieved, thanks to your absolutely amazing support.
So here are just a few of our many highlights of the year, that have all been made possible because of you. Merry Christmas everyone.
https://buff.ly/2CxogE7
We are always incredibly touched and inspired to read your stories and hear about your personal retinoblastoma journey - and we know that you are too.
Here is a collection of real life stories written by, and for, you: http://chect.org.uk/category/real-life-st ories/
The Highlands Charity Challenge Team 2018 cycled from Aberdeen to the Cairngorm mountain range, hiked across it and then cycled on to Inverness – all the while raising money for CHECT. Thank you to this awesome group of 12 and their trusty support Brain for donating an amazing £2,584.43!
What a great piece on BBC Radio Sheffield about Olivia, 9, who won a CHECT Champion Award for the courage she has shown since being diagnosed with retinoblastoma. Thanks to Olivia and her mum Jane for helping us to raise awareness of retinoblastoma.
Our Chief Executive Patrick Tonks was also interviewed. You can listen to the piece (it starts at 9 mins in, and again at 1hr 8 mins):
If you’ve been affected by retinoblastoma, or you’re worried about it, we’re here to help.
You can find out more about the support we offer, and how to get in touch with us, here: https://chect.org.uk/your-support-worker/
Since 1997, the Childhood Eye Cancer Trust has funded more than 20 research projects, totalling almost £700k.
You can find out more about CHECT research and the impact it is having here: https://buff.ly/2Cc8b6y #retinoblastoma
We'd like to say a huge thank you to @visionexpress for their incredible support over the last eight years.
This partnership has made such a different to raising awareness of retinoblastoma and supporting people affected by it. We were delighted to present them with this certificate at their Christmas charity quiz last night.
Join #TeamCHECT for the Great North Run 2019! On 8 September the 13.1 mile course will be lined with supporters all the way from the iconic Tyne Bridge in Newcastle, right out towards the stunning coastline in South Shields.
If you can raise a minimum of £500 sponsorship, come with us! Contact diane.emery@chect.org.uk for more information or find out more on our website here: https://chect.org.uk/other-ways-to-help/e vents/running/
We are incredibly grateful for all of the support Vision Express have provided over the last 8 years to help support babies, young people and adults affected by Rb. Just FYI, CHECT came 16th/19 in the quiz! #didntcomelast #proud
Cassy Bell’s ‘Brittany Party’ went down a storm - raising over £1,000 and a lot of fun along the way. Thank you to Cassy and to loyal supporters Gill and Jonathan Crook for such a wonderful gift – and fab photograph!
Our volunteer Cath McParlin was thrilled to pick up a cheque for £635 from Waitrose Ponteland, near Newcastle upon Tyne. This superb sum was raised for us in their Community Matters initiative. Thank you to Waitrose for your continued support.
Our monthly news update is out now! You can read it here: https://mailchi.mp/1bba47633293/rbz1lakvt r-2895221
Nearly 10 years ago, in two different parts of the country, two children were diagnosed with retinoblastoma. Now the pair have come together to receive a prestigious award in recognition of the courage they have shown during their brave journey.
Congrats James and Olivia! Read their stories here: https://chect.org.uk/james-and-olivia-are -champions/
Our Christmas cards are selling fast! If you haven't bought yours yet, order online today.
All the cards were designed by children who have been affected by retinoblastoma, with profits going to CHECT: https://chect.org.uk/other-ways-to-help/c hristmas/
Fabulous article in the Yorkshire Post about Olivia, who has won a CHECT Champion award for her courage and resilience throughout her retinoblastoma journey.
Well done Olivia!
https://www.yorkshirepost.co.uk/…/award -for-olivia-after-ch…
Did you know that becoming a member of the Childhood Eye Cancer Trust is free, easy and open to anyone affected by retinoblastoma, as well as their friends, family, all supporters of CHECT and health professionals?
You can find out more and join today here: https://chect.org.uk/other-ways-to-help/b ecome-a-member/
Kate was diagnosed with retinoblastoma as a baby and had her eye removed before her first birthday. Now, 28 years later, she looks back on her journey to achieve her dream of becoming a nurse, so she can support families just like hers.
Read her story here: https://chect.org.uk/having-one-eye-makes -me-who-i-am/
Our Son had this in 1976 when he was two and a half. He had his eye removed at Leicester Royal Infirmary. When we went for a check up, another tumour was found in his remaining eye
We were quickly sent to St Barts in London where he was given Laser treatment, and thank goodness this cured him. We are so grateful that the Hospital saved his life.
He is now 44 years of age, has a good job, drives and is married with two Children. There is life after Retina Blastoma
My son was diagnosed with this cancer in 1975 when really it wasn't heard of he was just two and a half he lost his eye and fought this horrible disease for two and a half years wen he sadly lost his life he was just 5 years old
I am so glad this type of cancer is being made more aware of now
My daughter and I had help and support when she was diagnosed with Retinoblastoma at the age of 4 months it is not a cancer many people have heard of please spread the word for awareness. Thank you
It supported, and still does, my Grandson who lost his right eye to cancer.
Thank you and we are happy to support.
An extraordinary organisation with exceptionally kind and caring people working for it dedicating their time and efforts to support the families through challenging times!
Amazing! I lost my eye at 22 months and had a bit of a hard time when i was school but now thats all over i've been a lot more confident in myself!