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UK reg CIO providing worldwide support and information for the severe bleeding disorder FNAIT Fetal and Neonatal Alloimmune Thrombocytopenia which may cause the fetus /neonate to bleed into their brain and /or other major organs. No 1161698
Naitbabies.Org Description
Naitbabies.org provide worldwide support and information for the genetic disorder Neonatal Alloimmune Thrombocytopenia FNAIT which may cause the unborn or newborn baby to bleed into their brain. Charity No 1161698
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Blood group A mothers are more likely to develop anemia during antenatal intravenous immunoglobulin treatment of fetal and neonatal alloimmune thrombocytopenia.
CONCLUSION: IVIG is the standard of care treatment for AIT; however 1 g/kg/wk is known not sufficiently effective in severely thrombocytopenic fetuses (Berkowitz, OB-GYN 2006). Therefore we believe appropriate treatment of women whose previous babies did not have an ICH needs to be > 1g/kg/wk. Our study found that hem...olytic anemia in non-O blood types may be an important side effect of 2g/kg/wk IVIG treatment, indicating that patient blood type should be considered when deciding which IVIG regimen to use.
Read the article from the Transfusion Evidence Library: http://www.bloodjournal.org/content/122/2 1/3540…
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Brilliant!!
Interesting evidence ‚Äė‚Äô‚ÄôAnti-HLA class I antibodies have been suggested as a possible cause of fetal and neonatal alloimmune thrombocytopenia (FNAIT). The aim of this study was to characterize maternal anti-HLA class I alloantibodies in suspected cases of FNAIT‚Äô‚Äô.
https://www.sciencedirect.com/‚Ķ/artic‚Ä ¶/pii/S0165037817300797
READ THE LATEST EXCITING NEWS NEWS RELEASE REGARDING THE DEVELOPMENT OF NAITgam!!!!!! Statement release from Soren Weis Dahl CEO, #Prophylix AS regarding the current status of the manufacture and development of ~#NAITgam. http://www.prophylix.com/news-and-links/< br>
We are exhibiting at the National Exhibition Centre, Birmingham today and tomorrow!!!! Stand A19...... #NAIT #FNAIT #FMAIT
Follow us on twitter www.twitter.com/naitbabies
#Canadian Information about #FNAIT from The Hospital for Sick Children #NAIT #FMAIT www.aboutkidshealth.ca/Article…
Brilliant!!!!! Thanks for putting our vest on display for other trekkers Siobhan!!!!! The signatures look awesome ūüĎćūüėĀ‚̧ԳŹ
London marathon 2020 ballot entry spaces open now. What a great way to raise awareness of NAIT https://www.virginmoneylondonmarathon.com /…/h…/ballot-entry/
Good luck Kellie Burville (16221) and Alice Buttle (32694) running the London Marathon tomorrow in aid of Naitbabies.
Kellies fundraiser link. https://uk.virginmoneygiving.com/fund…/ showROFundraiserPage…
Alice’s fundraiser link. https://mydonate.bt.com/fundraisers/aunti ealiceruns
Read the latest paper on #FNAIT written by the Royal College of #Obstetricians and #Gynaecologists. www.obgyn.onlinelibrary.wiley.com/…/pdf /10.…/1471-0528.15642
Huge congratulations and thanks to Siobhan, Amena, Scott and Dean!!!!! fabulous team trekking to Everest base camp!!!!! and thanks to Rachael Walker keeping us up to date!!! ūüĎćūüėĀ‚̧ԳŹ To read more, or to support Siobhan on her challenge, you can visit her fundraising page here > https://mydonate.bt.com/fundraisers/siobh anmoran-walker69 ‚Ķ
And they‚Äôre on their way to Kathmandu then Everest Base Camp!!! Woooo hooooo ūüĎÄ ūü•ĺ ūüßó‚Äć‚ôÄÔłŹ ūüŹĒ ūüėĀūüĎć
ICTMG - International Collaboration for Transfusion Medicine Guidelines. Established in 2011. Members include transfusion experts from all over the world. See the FNAIT publications, presentation, treatment guidelines, podcasts for physicians and patients, patient leaflets in English, Spanish, French, Portuguese, Italian, German and Japanese. Please contact info@naitbabies.org for guideline details. www.ictmg.org/fnait-1
Simple explanation of DNA, genes, chromosomes and mutations!
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