Fibromyalgia Awareness Northern Ireland
Tuesday: 10:00 - 14:00
Wednesday: 10:00 - 14:00
Thursday: 10:00 - 14:00
Friday: 10:00 - 14:00
Saturday: -
Sunday: -
About Fibromyalgia Awareness Northern Ireland
Fibromyalgia Awareness & Support group situated in Limavady Northern Ireland.
Support. Educate, Advocate
For and on behalf of fibro patients in N. I.
FMANI charity receives NO council or government funding for our charity & depends on donations.
Fibromyalgia Awareness Northern Ireland Description
Fibromyalgia Awareness Northern Ireland
(F M A N I) is a registered charity organisation dedicated to providing help and support to Fibromyalgia sufferers and those who care for them.
Our mission is to provide an organisation where those with Fibromyalgia can find understanding, knowledge, support and practical help in coping with this disease.
(((Description)))
ON January 10th 2013 FMANI was set up to raise awareness of Fibromyalgia especially in Northern Ireland. Fibromyalgia is a chronic pain illness that can affect a person from head to toe. There is no cure, and they include a wide range of symptoms. They can affect everyone differently.
Chronic means this illness is for life. Yes there are good days, but for a person living with Fibromyalgia even a good day equals pain. They require living hour by hour, and not knowing what the day ahead will bring, or when the next flare up could happen.
We really want people to help us spread awareness of this debilitating illness, so that the people that are faced with this can live in a more supportive world.
It is hard enough living with chronic pain and all the other nasty symptoms, without being judged because they are invisible.
We want to give those affected by (FM) a voice.
We want to make it VISIBLE!
***PLEASE NOTE***
(1) (FMANI) does not offer professional medical advice and all medical questions should be directed to a medical professional. (FMANI) only offers advice based on personal experiences and research, and is in NO way intended to replace those of any medical professional. We will not accept responsibility for others actions, nor any comments or posts made on our closed group page by anyone else.
(2) Our support group page is awareness, support, & advocate page, and we DO NOT allow advertising, bullying, or disrespectful comments. Everyone has an opinion, respect others, if any of the above happens group members will be informed by FMANI and your post /comment will be removed. If a group member repeatedly does any of the above they will banned from the page. "NO EXCEPTIONS"!
(3)We ask members to please bear in mind that our support group page is run by volunteers. Who may not be online 24 /7 but as soon as a member’s comment or (PM) Private Message is seen FMANI volunteers will reply to you. All Volunteers suffer with Fibromyalgia, so they do have days where it is impossible to be online.
(4) If you have any questions or concerns please (PM) any of our volunteers, and they will reply to you as soon as they can. Our volunteers are NOT medically trained and sometimes they cannot answer your question but they will do their best to help you with your concerns or worries and will ALWAYS support you as much as they can.
Helpline:
Mon-Fri 9am-5pm
0845 600 32 13
Thank you for taking the time & showing an interest in our charity and the work we do for Fibromyalgia patients across N. Ireland
*** BECAUSE YOU MATTER! ***
Reviews
https://www.bbc.co.uk/news/uk-england-der byshire-46880547…
https://fibromyalgiaresources.com/driving -fibromyalgia/…
https://fibromyalgiaresources.com/fibromy algia-heads-rese…/…
FMANI AGM will take place Friday 22nd February 2019 at 4pm sharp.
Can everyone please be in attendance.
https://welfareweekly.com/dwp-officials-p ocket-44-million…/…
Please share with anyone you think might be able to help us out.
Team FMANI
https://theheartysoul.com/myalgic-encepha lomyelitis-chron…/…
https://www.psychologytoday.com/…/stanf ord-neuroscientists-…
https://www.living-smarter-with-fibromyal gia.com/shoulder-p…
FMANI are holding a street collection in Limavady on Saturday 2nd February. We are looking for volunteers who could spare an hour or so to help with this.
Contact: 028 777 68066 to put your name down.
If you or someone you know would like to help, please get in touch, we would very much appreciate it.
more awareness the better! coz im knackerd out after years of trying to explain, as in fybro wottey was the thing i got asked lol! great to have some stronger voices ere! thank you for raising awareness & keep up the good work <3 xx
When I was first diagnosed with fibromyalgia, I didn't no what to do, where to go or who to talk to
When I found out about the website they were a lifesaver to me ❤️
They offered help and support which no one else could give me as it is an 'invisible illness'
The FMANI site always keeps us updated with the latest research and information on this condition FIBROMYALGIA!!!
Another amazing aspect of FMANI is that I can get free Angel reiki which really helps me thanks to rocky who does this really amazing job ⭐️
At the moment especially I feel that we all need to put something back into this organisation. It is up to us as members to help spread the word about invisible illness
Words can not describe how much much this FMANI website has helped me get to grips with my lifelong chronic condition and accept the fact that it still is known as an 'invisible illness'
This brilliant website has also give me the chance to chat with and talk to other people who suffer from FIbromyalgia I don't feel as alone and isolated because of FM
When I contact the FMANI, no matter how many times, it's never a problem as there is always someone there to talk to even when David is not there (not often) ⭐️
Another amazing aspect of this charitable website is that the news feed has funny posts that really does lift my mood
On the subject of fundraising and spreading awareness I think, as us members could do a lot more to spread the word and raise awareness of fibromyalgia
A few ideas in my mind would be bag packing, car stickers, posts and reposts, hoodies and leaflets along with the distrbution of them ❓
At the moment there are class hoodies (see model) previous pics) for sale and they don't half draw attention. My daughter and I have got one each and the interest shown in the hoodies themselves and the condition fibromyalgia is unreal
I don't normally wear hoodies but in this case I can make an exception as they are stylish, comfy and cool
At the end of the day FMANI is an amazing charity and what we put in we get out
Thankyou FMANI xxx
The group is amazing helps so many people and the advice they give you is so very helpful knowing others share what yr going through is good to know David and staff are so honest and help me so much with my FM wether it was about forms to fill in too advice about FM they are there 24/7 amazing group thanks so much too all involved and the many friends ive met along the way day to day its a battle to stay in charge of this illness, God Bless xxxx
Most excellent :)
It's great place to meet like minded people
I love the information. The support. Amazing!!!!!!
Help support and awareness and everything you need to know that can help you understand the condition better great organisation .☺☺☺☺☺
Great place, run by great people, for lovely folks - coffee night every Wednesday for night - come along and find out more this Wednesday - FMANI Charity shop 2 Catherine St., Limavady ����
Get lots information and good to know someone will listen
FMANI provides you with valuable information and support. It's somewhere that you can ask questions about symptoms to see if they are due to Fibro or wether you may need to see a doctor. The group is friendly and you get to know the other members. It's somewhere you can voice you worries or problems and no one will judge you as lazy, hypochondriac etc etc. It's also not too formal so you can also have a joke and a laugh with the other members.
The posts that are put up with different yet relevant articles provide you with a lot of useful information. I would say this group is invaluable. I cannot express my gratitude enough to the admin who put so much work into finding these articles.
On a personal note...thank you so much for being there for me. I would be lost without you xx
Absolutely brilliant. I don't know what I would do without it. It's really good to b able to talk to somebody even in the middle of the nite. There's usually somebody up with the same problems as ur self. It's very informative to. I have learnt a lot.
A very informative page & group, well organised and everyone cares about each other.
A great place to find support
more awareness the better! coz im knackerd out after years of trying to explain, as in fybro wottey was the thing i got asked lol! great to have some stronger voices ere! thank you for raising awareness & keep up the good work <3 xx
When I was first diagnosed with fibromyalgia, I didn't no what to do, where to go or who to talk to
When I found out about the website they were a lifesaver to me ❤️
They offered help and support which no one else could give me as it is an 'invisible illness'
The FMANI site always keeps us updated with the latest research and information on this condition FIBROMYALGIA!!!
Another amazing aspect of FMANI is that I can get free Angel reiki which really helps me thanks to rocky who does this really amazing job ⭐️
At the moment especially I feel that we all need to put something back into this organisation. It is up to us as members to help spread the word about invisible illness
Words can not describe how much much this FMANI website has helped me get to grips with my lifelong chronic condition and accept the fact that it still is known as an 'invisible illness'
This brilliant website has also give me the chance to chat with and talk to other people who suffer from FIbromyalgia I don't feel as alone and isolated because of FM
When I contact the FMANI, no matter how many times, it's never a problem as there is always someone there to talk to even when David is not there (not often) ⭐️
Another amazing aspect of this charitable website is that the news feed has funny posts that really does lift my mood
On the subject of fundraising and spreading awareness I think, as us members could do a lot more to spread the word and raise awareness of fibromyalgia
A few ideas in my mind would be bag packing, car stickers, posts and reposts, hoodies and leaflets along with the distrbution of them ❓
At the moment there are class hoodies (see model) previous pics) for sale and they don't half draw attention. My daughter and I have got one each and the interest shown in the hoodies themselves and the condition fibromyalgia is unreal
I don't normally wear hoodies but in this case I can make an exception as they are stylish, comfy and cool
At the end of the day FMANI is an amazing charity and what we put in we get out
Thankyou FMANI xxx
The group is amazing helps so many people and the advice they give you is so very helpful knowing others share what yr going through is good to know David and staff are so honest and help me so much with my FM wether it was about forms to fill in too advice about FM they are there 24/7 amazing group thanks so much too all involved and the many friends ive met along the way day to day its a battle to stay in charge of this illness, God Bless xxxx
Most excellent :)
It's great place to meet like minded people
I love the information. The support. Amazing!!!!!!
Help support and awareness and everything you need to know that can help you understand the condition better great organisation .☺☺☺☺☺
Great place, run by great people, for lovely folks - coffee night every Wednesday for night - come along and find out more this Wednesday - FMANI Charity shop 2 Catherine St., Limavady ����
Get lots information and good to know someone will listen
FMANI provides you with valuable information and support. It's somewhere that you can ask questions about symptoms to see if they are due to Fibro or wether you may need to see a doctor. The group is friendly and you get to know the other members. It's somewhere you can voice you worries or problems and no one will judge you as lazy, hypochondriac etc etc. It's also not too formal so you can also have a joke and a laugh with the other members.
The posts that are put up with different yet relevant articles provide you with a lot of useful information. I would say this group is invaluable. I cannot express my gratitude enough to the admin who put so much work into finding these articles.
On a personal note...thank you so much for being there for me. I would be lost without you xx
Absolutely brilliant. I don't know what I would do without it. It's really good to b able to talk to somebody even in the middle of the nite. There's usually somebody up with the same problems as ur self. It's very informative to. I have learnt a lot.
A very informative page & group, well organised and everyone cares about each other.
A great place to find support
More about Fibromyalgia Awareness Northern Ireland
Tuesday: 10:00 - 14:00
Wednesday: 10:00 - 14:00
Thursday: 10:00 - 14:00
Friday: 10:00 - 14:00
Saturday: -
Sunday: -