Northern Ireland Rare Disease Partnership
About Northern Ireland Rare Disease Partnership
Our mission is that no one in NI is disadvantaged because of the rarity of their condition
Northern Ireland Rare Disease Partnership Description
We connect and create opportuniities to:
*connect and bring peoople living or working with rare diseases together to provide information, signposting and support
*advocate and ensure a strong and effective voice & participation in service development and delivery
*educate and improve knowledge, expertise and awareness
*innovate and find ways to deliver new and better services that meet the needs of people with a rare disease, their family and carers.
NIRDP is a group of interested families, patient organisations, and professionals who donate or volunteer their time. Members have health conditions, caring responsibilities, jobs and family lives.
More about Northern Ireland Rare Disease Partnership
http://www.nirdp.org.uk/