Haemophilia Scotland

The Scottish Infected Blood Forum and Haemophilia Scotland have written a joint letter to Joe FitzPatrick MSP, Minister for Public Health, Sport and Wellbeing to ask for a meeting about the future development of the Scottish Infected Blood Support Scheme (SIBSS). The letter recognises the commitment of the Minister, and the Scottish Government, to working with the community to improve the scheme, which is still provides more support proportionately than any of the other UK schemes. [ 231 more words ] https://haemophilia.scot/scottish-campaig ning-charities-re…/

We are excited about our first ever Women's Conference!
This event is for any girl/woman affected by a bleeding disorder. You don't have to have one to attend, you could be a mother, sister etc. of someone with one.
Got kids? We'll have a crèche service available, too.
... >> Book your place now! https://haemscotwomenconf.eventbrite.co.u k
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Yesterday, the Infected Blood Inquiry oral hearings started in London. After over three decades of campaigning this was the first time infected and affected people have given evidence to a UK-wide statutory Public Inquiry. There are going to be hearings like this all over the country so that witnesses and people who wish to attend don’t have to travel too far. [ 945 more words ] https://haemophilia.scot/infectedbloodinq uiry-oral-hearing…/

Today, twelve contaminated blood and blood products campaigners have written to the UK Government urging action on improving financial support payments. It was three months ago that these twelve campaigners. including Haemophilia Scotland Chair Bill Wright, were invited to a meeting with UK Ministers and set out a case for improved financial support. Read the letter from campaigner in full… [ 250 more words ] https://haemophilia.scot/uk-govt-challeng ed-on-lack-of-dec…/

Only a few weeks now until our first Women's Conference!
On the 18th of May at Holy Trinity Church Hall in Stirling between 10:30am-4:00pm, we'll have motivational speakers, a session on mindfulness and cake (please bake and bring!) It'll be a fun-filled day bringing women across our community together!
Got kids? We'll have a crèche service available, too.
... >> Book your place now! https://haemscotwomenconf.eventbrite.co.u k
See More

"Sometimes you get people who want to wrap you up in cotton wool, but for a lot of haemophiliacs it is: 'this is what I have, not who I am'."

Thanks to the teens that attended our driving lessons event at Knockhill on Saturday! It was a gloriously warm, clear day which provided the perfect conditions for driving! We had six spots (out of sixteen) filled by Haemophilia Scotland. The day started off with a bit of theory before moving onto the tarmac where teens learnt the basics of driving in the dual-controlled Ford Fiestas. [ 180 more words ] https://haemophilia.scot/teens-get-behind -the-wheel-at-kno…/

Great to see #WorldHaemophiliaDay #WHD2019 marked in such style in Dublin this year.

The next event we have in our calendar is for women. If you are a woman with, or affected by, a bleeding disorder, join us at our first ever Women's Conference!
Book your place now ⬇️⬇️⬇️ https://haemscotwomenconf.eventbrite.co.u k

World Haemophilia Day was one week ago today!
Thanks to all who have shown support, either by attending our evening reception at the Scottish Poetry Library, by using the Haemophilia Scotland Facebook profile picture frame, by organising fundraisers for us or any other way (wearing red, painting your nails red etc.) In doing so, you have helped to raise awareness of our bleeding disorders community.
Below are just a few photos to give a taster of the evening reception. We'll have the photos from the professional photographer up shortly.

Take a look at this fantastic new video from Alex Dowsett about his Little Bleeders charity, the support he gets from his team and Oakley, and his thoughts about #WorldHaemophiliaDay #WHD2019 #WorldHemophiliaDay

A big thanks to Runway Studios Makeup for their work on acknowledging World Haemophilia Day 2019!

On #WorldHaemophiliaDay #WHD2019 we are looking back to all the fantastic Scottish monuments which marked the day for us last year by lighting up red.
Thanks to everyone who fed in their ideas, contacted monuments, or went out on the night and took photographs.

On #WorldHaemophiliaDay #WHD2019 we are looking back to all the fantastic Scottish monuments which marked the day for us last year by lighting up red.
Thanks to everyone who fed in their ideas, contacted monuments, or went out on the night and took photographs.

Why not take part in the EHC's Winding Road Campaign. The EHC are a fantastic organisation who do great work bringing patients and healthcare professionals together from across Europe. We find them an invaluable source of information and support.

Today is World Haemophilia Day! This year's theme is Outreach and Identification. Haemophilia Scotland has considerable involvement with outreach and identification abroad and at home. In 2016, we were involved with an outreach programme in Malawi. Susan Warren, Lawrence Lincoln and Joan Rae visited hospitals in Lilongwe and surrounding areas and educated people on identifying and diagnosing bleeding disorders. Also, Haemophilia Scotland is twinned with the Kenya Haemophilia Association (KHA) through the World Federation of Haemophilia (WFH). [ 174 more words ] https://haemophilia.scot/today-is-world-h aemophilia-day-2/

This WEDNESDAY is WORLD HAEMOPHILIA DAY!
Join us as we mark the day with an evening reception at the Scottish Poetry Library. 6:00pm-9:00pm.
Guests include Hamish MacDonald, 2015-2017 Scottish Scriever, and Theresa Talbot, broadcaster and author of "Keep Her Silent."
... We'll also hear from our member, Jay Gardner, on his experience of living with a bleeding disorder.
Book your place now ⬇️⬇️⬇️ https://haemscotwhd2019.eventbrite.co.uk< br> See More

Coming up THIS SATURDAY on April 20th, we have driving lessons for teenagers aged 13-17 affected by a bleeding disorder. 🚦🚗
12:30pm-5:30pm @ Knockhill Racing Circuit.
The purpose of this event is to equip teenagers with the confidence to drive which can open up a whole range of possibilities for them and put them on a path to being independent, young adults.
... Book a place for your teen now! Registration closes Wednesday. ⬇️⬇️⬇️ https://haemscotdriving.eventbrite.co.uk< br> See More

Before you click “buy” on that last minute FATHER’S DAY gift or your ANNUAL HOLIDAY INSURANCE, or even BOOKING YOUR HOLIDAY, did you know that whenever you buy anything online you could be collecting free donations for Haemophilia Scotland?
There are over 3,000 shops and sites on board ready to make a donation, including Amazon, John Lewis, Aviva, thetrainline and Sainsbury’s – it doesn’t cost you a penny extra!
https://haemophilia.scot/raise-funds-whil e-you-shop-it-won…/

Very friendly, very helpful.

Very friendly, very helpful.