The Aarskog Foundation

Raising the profile of Aarskog Syndrome, raising awareness of issues effecting parents, carers & professionals working with children & adults of Aarskog.

The Aarskog Foundation is a global alliance of people living with Aarskog Syndrome (AS) of all nationalities.

We are an international network of patients, carriers and families faced with common challenges derived from the rarity of our condition.
Addressing Aarskog Syndrome is vital in order for it to be recognised as a disability across all governing bodies. Ensuring all Aarskog patients have access to the same resources as any other person.

Patients living with Aarskog Syndrome come together through The Aarskog Foundation creating an Aarskog community and a voice through advocacy and exchange experiences. To this end we aim to unite, expand and put Aarskog Syndrome on the agenda of organisations and institutions across the world.

Donations to The Aarskog Foundation help to fund patient support and advocacy, educational materials, research and outreach to doctors.

Your support will bring hope to many and have a global impact.