Anaphylaxis Campaign

Thanks to your support we have raised over £900 through Give as you Live! For more information on how you can become a #GivingHero and help raise funds just by shopping online visit our website: http://ow.ly/elXL30lrsI3

Got questions about #vegetables? Our #knowledgebase has been certified by the Information Standard as a provider of high quality health and social care information. #FactFriday. For further information: http://ow.ly/C5AU30jUpKI

If you're heading off to #RiZEFestival this weekend, have a look at our top tips for staying safe during the festival period on our website: http://ow.ly/djb030lqQgt #festival

Can you outgrow an allergy? Visit our YouTube channel for Doctor Matt Doyle's advice on this and much more! #TipTuesday Video Link: http://ow.ly/FAIV30l7Nyk

ALLERGY ALERT
We have been alerted by E H Booths that it is recalling its BLT, Chicken Salad, & Lancashire Cheese & Chutney Sandwiches from sale because they may contain rye & oats which are not correctly declared on the ingredient label. For info visit: http://ow.ly/21cr30lntPv

Are you celebrating an anniversary, wedding or birthday? If you are why not ask your friends and family to make a donation in lieu of gifts? By doing so you can help us continue to support people at risk of life-threatening allergic reactions. For info: http://ow.ly/HwO530ll3Fh

We have received an updated statement from Mylan regarding the availability of EpiPen® 0.3mg and EpiPen® Jr 0.15mg Adrenaline Auto-Injector. For more information and to read this please visit our website: http://ow.ly/VsKy30llFvk

ALLERGY ALERT #Egg #Milk #Gluten
We have been alerted by Star Distribution (UK) Ltd that it is recalling its by Cake Zone Muffins 4 pack Chunky Cherry and Double Chocolate Flavour from sale because it may contain egg, milk and wheat (gluten) which are not correctly declared on the ingredient label.
The product is therefore unsuitable for and should be avoided by anyone with an allergy or intolerance to egg, milk and wheat (gluten).
... If you have bought the above product and have an allergy or intolerance to egg, milk and wheat (gluten), do not eat it and return to your nearest instead return it to the store from where it was bought for a full refund.
For more information please visit our website: http://ow.ly/YwIa30lkOSm
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Do you work in #healthcare? Get wised up about #anaphylaxis with #AllergyWise for Healthcare Professionals our online #training course accredited by @thercn. Discounts available for our Healthcare Professional Members! Visit wwww.allergywise.org.uk to register #WisdomWednesday

Our free online course AllergyWise for Parents & Carers of School-age children is designed to help you improve your knowledge about #allergies, get wised up about #anaphylaxis and feel more confidently in control of family life #WisdomWednesday. For info: http://ow.ly/Daof30kZgWU

Should you carry the instructions for your AAI? Visit our YouTube channel for Doctor Matt Doyle tips #TipTuesday Video Link: http://ow.ly/mEA530l7Nl8

There are so many ways you can donate to Anaphylaxis Campaign. All donations help us continue to provide information and support to people living with severe allergies, their families and carers. For more information visit: http://ow.ly/nwMd30lfCxr

We've been advocating to the Department of Health, the pharmaceutical industry and other key stakeholders how the supply constraints of adrenaline auto-injectors (AAIs) is affecting people in the UK. We're continuing to raise with them the need for people living with severe allergies to have access to AAIs and informing them about issues and queries that you are raising through our national helpline. We have received a statement from the Department of Health about the current situation, which is available on our website here http://ow.ly/7aOa30lfJ27

Do you love to swim? Our Comms team would love to hear from anyone living with severe allergies who doesn't let their condition hold them back from enjoying this hobby for a press opportunity. You must be willing to be interviewed by telephone and potentially have your picture included in an article. Send your story to us by completing our media volunteer form online: https://www.anaphylaxis.org.uk/media-volu nteer-apply/.
Before applying to become a media volunteer you will n...eed to hand a few short paragraphs about your experience of living with allergies and anaphylaxis and any details of your diagnosis and treatment, if they are relevant. Don’t worry about making your story perfect as anything you say to us as part of your application is confidential. If you are aged under 18, your application must be supported by your parent or guardian.
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Jext® have announced the launch of their new website. Whether you have been prescribed Jext® adrenaline auto-injectors recently, or been using for a while, you may find it helpful to refresh your memory using their how to use videos. Plus, if you are planning on going on holiday soon, there are resources in 22 languages translations to help with your travel. Visit www.jext.co.uk for more information.

ALLERGY ALERT We have been alerted by Lidl Ireland that they are recalling in their Republic of Ireland stores its by Vitasia Gyoza Dumplings with Chicken and Pork from sale because it may contain Egg, Mustard and Cereals containing Gluten and there may also be the unintentional presence of Celery, Crustaceans, Milk, Molluscs, Sesame and Soya which are not correctly declared in English on the ingredient label.
The product is therefore unsuitable for and should be avoided by a...nyone with an allergy or intolerance to Egg, Mustard, Cereals containing Gluten, Celery, Crustaceans, Milk, Molluscs, Sesame and Soya . If you have bought the product do not eat it.
For further information visit: http://ow.ly/S1DY30lfvMW
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Got questions about #legumes? Our #knowledgebase article has been certified by the Information Standard as a provider of high quality health and social care information. #FactFriday. For further information: http://ow.ly/o7Rp30jUpx5

Very well informed on food allergies , however it is also important to highlight the risks of allergic reactions that medicinal and cosmetic products can produce eg aspirin, skincare products etc.

This organisation has been invaluable during growing up with multiple severe allergies for myself and my family. I remember having the Cyril the Squirrel book and going to some of the helpful workshops when younger. Amazing work! X

Spoke to a lovely lady yesterday on the helpline who gave us some great advice really helpful and hopefully were now going down the right road to get our son some help.

I’m a new member but been following the campaign for some time. Thank you #anaphylactic campaign for keeping me updated with the most recent update, giving me access to vital information which unfortunately NHS doesn’t provide. I attended today the anaphylactic conference in central London where I was given all the information I’ve been trying to get to for 11 years. All the staff are truly amazing.

I'm 15 years old and have been diagnosed with idiopathic anaphylaxis from 3 months old I have never found such a useful campaign that can help me explain to other to help them understand what anaphylaxis is and how serious it can be x�

I was diagnosed with idiopathic anaphylaxis a little over 2 years ago. I am almost 30 and have been in and put of the emergency room more times than I can remember. People need to be more informed and with this organization we can do that.

I have had a bout of allergic reactions over the past ten months and we couldn’t figure it out. It was getting worse over the months. As an Indian, there’s always mustard in my food in very small quantities so I wrote off mustard until I recently had a HORRIBLE (and now that I look back possibly fatal) reaction to it. I found your article online and it really helped me identify it and test it further. So thank you for possibly saving my life.

I have been a member since my daughter was diagnosed with a severe peanut allergy in 2005. The Campaign are able to give lots of advice and information, helping to increase your knowledge and give you the confidence to challenge those that 'think' they know! As my daughter gets older we will tap into the workshops available which will help her to manage the allergy herself.

I am really glad that I found this campaign site. AC is helpful, resourceful and gives practical advice and reassurance to many organisations. I find the advice well researched and easy to follow. AC strives hard within the industry and the media and their staff are so helpful to deal with. Great work all - please keep it up.

Hi very very good page. I am a sufferer with a nut and seafood allergy and wanted to know how I take part in the research projects that they are doing to make people immune to allergens. Please can someone message me or comment back? Thanks

Have been a member most of my life and the campaign is great, gives great information and has helped me find food that's safe for me!

Cannot thank you enough for your invaluable, practical advice and support. Living with anaphylaxis can be extremely stressful amd emotional; knowing I can ring and speak to someone who both understands and sympathises makes everything more manageable

You are supposed to be the voice of the allergic community. You are supposed to help us and take a stand for us. But you do not. I am hugely disappointed.

Very disappointed and sad at a missed opportunity for a charity I would love to support but sadly I feel falls way below and makes some serious mistakes. I do a lot of charity fundraising for multiple charities but hard to support this, a charity that I seriously question what they do and the lack of support and campaigning for issues facing people with anaphylaxis.

Wish the Anaphylaxis Campaign supported and campaigned for people with peanut allergy. I am so disappointed in the Anaphylaxis Campaign for letting us down.

Very disappointed with AC . I am livid that you recently shared post regarding air travel, allowing a 'journalist' a platform to mock allergy parents and trivialise the risks of airborne anaphylaxis, to which I believe he knows nothing about. I am even more furious at how AC have reacted to complaints and comments surrounding this matter. Blame a temp ! No apologies ! Going against the core of your being is not doing you any favours !

Allergies do not always equal anaphylaxis - anaphylaxis is a rare reaction to an allergen. You can have allergies that are not life threatening in fact the majority of allergies are not life threatening. Based on all of the recent comments regarding a nut ban on aeroplanes even within the allergy community I would say there needs to be education.



I had allergies growing up and had to practice food avoidance, my son has anaphylaxis and has to practice food avoidance but there is a huge difference in the outcome of coming into contact with the allergen. I came into contact with my allergens frequently and I live on pins trying to make sure my son does not!



Some people within this 'community' seem like they are just about trying to win an argument and I despair what all this means for the world my child is growing up in. I try to stay relaxed and not keep him in a bubble but this is seemingly impossible when what is now abundantly clear is everyone is out for themselves. There is no supportive community as part of the anaphylaxis campaign, I get more support from the allergy groups I'm in on Facebook.



Having witnessed my children both fighting for their lives several times I just want an easy life and NEVER want to witness anaphylaxis again. Whatever can be done to make sufferers lives easier can only be a good thing in my book and if that means introducing a nut ban on aeroplanes then fantastic. It's the start for recognising that something dramatic needs to be done in the way the world views allergens and how things are managed in public.



And after that, I'm out, what's the point in following this page when I actually end up more stressed about my sons anaphylaxis - I certainly wouldn't ask anyone here for advice or support.