Barnsley Fibro Group

A LETTER FROM FIBROMYALGIA
Dear Miserable Human Being,
Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.... I took Energy from you and gave yo...u Exhaustion. I also took Good Sleep from you and i gave you Brain Fog. I can make you tremble internally. Oh yeah, I can make you feel anxious or depressed, too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’! You will have to go to many, many doctors until you find one who can help you effectively. If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!
Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!
In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.
Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.
Have a nice day!! (ROFL), Fibromyalgia
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It invaded my space. It took my job. It took my social life. It took my independence. It "tries" to torture me.... It "tries" to effect me in a negative way.... BUT GUESS WHAT..... it didn't try hard enough, because gradually I'm fighting back. You may have taken them once... but slowly and surely, I'm claiming back my space, my voluntary work, my independence. I refuse to allow you to torture me every day, My mind and body will fight you all the way!
I will live my dreams, Socialise, Make my own decisions, have my freedom,, think positively.... Up yours fibro!!!
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A few of our members also have this so I thought we would share some information. #WeCare4FND

Let us know where your from💜💜

Hope you all have an amazing pain free Christmas xxxx

All set up pop along and see us https://www.facebook.com/events/273392479 928514/?ti=cl

https://www.facebook.com/127137737296539/ posts/2209715685705390/

Barnsley and district fibromyalgia Christmas fair now open come join us at Priory campus kitchen is open too x

Good evening . Barnsley and District Fibromyalgia have 1 of our own events coming up this year and I've also booked us a stall at an event to raise money for remember my baby we need donations of things we can make gift hampers with and raffle prizes xxx if you can help let us know

It's our birthday!!! We are 4 years old today. Why not pop along to the to Tiger Lounge tonight and help us celebrate. Tickets are available on the door £7 for adults £3.50 for children We have live entertainment and a buffet x