Immune Deficiency Patient Group Of Wales

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With Thanks to the PID’┐Į Dear’┐ĮPID’┐ĮUK’┐Įmember,’┐Į’┐Į ’┐Į As’┐Įmany’┐Įof’┐Įyou’┐Įare’┐Įaware’┐Įthis ’┐Įhas’┐Įbeen’┐Įa’┐Įyear’┐Įof’┐Įinstabil ity’┐Įin’┐Įprovision’┐Įof’┐Įimmunoglobul in’┐Į (IG)’┐Įproducts’┐Įto’┐Įpatients.’┐Į’┐ĮWe’ ┐Įunderstand’┐Įthat’┐Įat’┐Įleast’┐Į800’┐ Įpatients’┐Įthat’┐Įhave’┐Įhad’┐Įto’┐Įswi tch’┐Į...
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Skip to main content CSL Behring Logo CSL Behring Back Our Company... OUR COMPANY Our Story Leading the Way on Rare and Serious Diseases The CSL Behring Commitment THE CSL BEHRING COMMITMENT Environment Giving Back Workplace Health and Safety Global Leadership Group Worldwide Locations Patients PATIENTS Find Your Disease FIND YOUR DISEASE Immunodeficiency and Autoimmune Diseases Hereditary Bleeding Disorders Hereditary Angioedema Alpha 1 Antitrypsin Deficiency Community Engagement COMMUNITY ENGAGEMENT Patient Programs in USA LEAD Grants USA Support and Assistance R&D R&D R&D Capabilities Product Pipeline Clinical Studies at CSL Behring CLINICAL STUDIES AT CSL BEHRING Current Clinical Trials Research Practices What is a Clinical Trial Awards and Grants AWARDS AND GRANTS Professor Heimburger Award Products PRODUCTS Global Products List Safety and Manufacturing Regulatory Compliance Careers CAREERS See Yourself at CSL Behring Diversity & Inclusion How We Care for You at CSL Discover Our People Vita Stories Newsroom Partnering Contact CSL Behring Vita Stories Vita 2018 What One Patient Wants You to Know What One Patient Wants You to Know Stephanie Smith, living with HAE, shares her insights about this rare disease.
By Greg Healy 09 Nov 2018 Play Video
No one knows their disease better than a patient. Stephanie Smith has been living with hereditary angioedema (HAE) her entire life. She knows what triggers the painful swelling caused by the rare condition, but she has also found the disease to be manageable. See more of Stephanie's tips on living with HAE in the video above.
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Sleeping boy laying in lap of mother. HAE patient and mom Stephanie Smith offers her tips for managing your own condition while caring for children. Caring for Kids While Caring for Yourself VIDEO: HAE patient and mom Stephanie on managing your and your family's health. Watch Video 26 Oct 2018 Wellness Cheryl Blackwell-Johnson How Do Patients Manage Stress? Cheryl shares a few activities that help her cope with her rare disease. Watch Video 03 Apr 2018 Wellness CSL Behring logo

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From a surgical nurse and certified CPR teacher: Please pause for 2 minutes and read this:
1. LetŌĆÖs say itŌĆÖs 7.25pm and youŌĆÖre going home (alone of course) after an unusually hard day on the job. 2. YouŌĆÖre really tired, upset and frustrated.... 3 Suddenly you start experiencing severe pain in your chest that starts to drag out into your arm and up in to your jaw. You are only about five km from the hospital nearest your home. 4. Unfortunately you donŌĆÖt know if youŌĆÖll be able to make it that far. 5. You have been trained in CPR, but the guy who taught the course did not tell you how to perform it on yourself. 6. HOW TO SURVIVE A HEART ATTACK WHEN ALONE? Since many people are alone when they suffer a heart attack without help, the person whose heart is beating improperly and who begins to feel faint, has only about 10 seconds left before losing consciousness. 7. However, these victims can help themselves by coughing repeatedly and very vigorously. A deep breath should be taken before each cough, and the cough must be deep and prolonged, as when producing sputum from deep inside the chest. A breath and a cough must be repeated about every two seconds without let-up until help arrives, or until the heart is felt to be beating normally again. 8. Deep breaths get oxygen into the lungs and coughing movements squeeze the heart and keep the blood circulating. The squeezing pressure on the heart also helps it regain normal rhythm. In this way, heart attack victims can get to a hospital. 9. Tell as many other people as possible about this. It could save their lives!! 10. A cardiologist says If everyone who gets this mail kindly sends it to 10 people, you can bet that weŌĆÖll save at least one life. 11. Rather than sending jokes, please... contribute by forwarding this mail which can save a personŌĆÖs life. 12. If this message comes around you... more than onceŌĆ” please donŌĆÖt get irritated... You should instead, be happy that you have many friends who care about you & keeps reminding you how to deal with a Heart attack.

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The Next Meeting AGM is at the Copthorn Hotel Cardiff at 6pm 20/11/2018 Contact Tommy or David idpgwales@gmail.com