The Ultra Rare Disease,Disorders & Disabilities Foundation

Rare Disease Day Northern Ireland showing the world we care about children and adults who are fighting a daily fight with rare disease

Rare Disease Day is for all the children who are fighting the fight of Rare Diseases they are young children who seem to have dropped through the net of all Health Services world wide when it comes to rare disease after many years we are still looking for cures and while we wait young children are paying the price and that's the ultimate price Death