Neuroendocrine Cancer Uk

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure that each charity’s research funds are directed towards the most appropriate areas of research.
As patients and healthcare professionals (HCPs), your feedback is vital in helping us to achieve a strategy that is fit for purpose, realistic and most importantly, based on the priorities of those affected by neuroendocrine/endocrine... tumours.
Please take a few minutes to share your thoughts with us about the type of research that you feel should be a priority. Thank you.
➡️ https://www.surveymonkey.co.uk/r/netresea rch
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BIRMINGHAM SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Mere Green is coming up.
... 📆 Saturday 18th May 🕔 11:00 - 13:00 📍 St James Church Centre
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OXFORD SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Oxford is coming up.
... 📆 Saturday 18th May 🕔 13:00 - 15:00 📍 Maggies Centre, Churchill Hospital
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May is Skin Cancer Awareness Month.
Merkel Cell Cancer (MCC) is a rare skin cancer that belongs to a group of cancers called neuroendocrine cancers. About three hundred people in the UK are diagnosed with MCC each year. Although MCC mostly affects older people (>50% are older than 76), it can still affect younger people and appears to be slightly more common in men than women.
Find out more about MCC here ➡️www.netpatientfoundation.org/…/Me rkel-Cell-Booklet-V5-20pp.…

On Tuesday 14th May, the Birmingham Neuroendocrine Tumour Centre at the Queen Elizabeth Hospital are holding a patient information day.
Further details of this event, and details of how to book a place can be found here ➡️www.netpatientfoundation.org/…/ne t-patient-information-day…/

Cancer can affect your finances and you may find that speaking to someone could help.
John is a Neuroendocrine Cancer patient and has very kindly offered to use his professional expertise and skills as a Chartered Financial Planner to provide financial guidance to the Neuroendocrine Cancer community.
If you’d like to find out more and get in touch with John then please visit our website ➡️ https://bit.ly/2Ux2Ul8

NET Patient Foundation is proud to be invited to attend the European Congress of Endocrinology (ECE) later this month.
The European Society of Endocrinology, maintains a strong focus on improving the diagnosis, treatment and long-term prognosis of endocrine conditions, helping to improve the lives of patients across Europe and beyond.
ECE's ongoing aim is to further the understanding and application of endocrine science within our community; ultimately benefiting the life of patients.

WEST LONDON SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in West London is coming up.
... 📆 Thursday 16th May 🕔 12:00 - 14:00 📍 Garry Weston Centre, Hammersmith Hospital
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If you have a Lung NEN (NET or NEC) we would be so grateful for your feedback by completing the survey below. ⤵️
The survey contains 18 questions which will enable us to find out what information and support is available for anyone affected by a Lung Neuroendocrine Neoplasm. There is also space for you to comment on what type of support or information you need now, or think you may need in the future. There are different types of Lung Neuroendocrine Neoplasm: typical and atypical, small and large cell neuroendocrine carcinoma and a condition called DIPNECH. You can complete this survey if you have any of the types mentioned.
Thank you for time and experience.

NORWICH SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Norwich is coming up.
... 📆 Tuesday 14th May 🕔 10:00 - 12:00 📍 Norfolk & Norwich University Hospital
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CHELTENHAM SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Cheltenham is coming up.
... 📆 Monday 13th May 🕔 10:00 - 11:30 📍 Maggie’s Centre
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Why not buy your shopping online via Give as you Live - Every purchase you make can raise FREE funds for us!
Sign up now ➡️ www.giveasyoulive.com/join/netpatientfoun dation

NEWCASTLE SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Newcastle is coming up.
... 📆 Saturday 11th May 🕔 11:00 - 14:00 📍 Freeman Hospital
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EDINBURGH SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Edinburgh is coming up.
... 📆 Friday 10th May 🕔 & 📍 - Please contact The Ann Edgar Charitable Trust to confirm time(s) and venue (details below)
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GLASGOW SUPPORT GROUP INFORMATION❤️ *** CHANGE OF VENUE ***
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
... Our next NET Natter support group in Glasgow is coming up.
📆 Saturday 4th May 🕔 13:30 - 15:30 📍 Renfield Centre St Stephen's Church, 260 Bath Street, Glasgow, G2 4JP
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Living with NETS can be very psychologically challenging given the unpredictability of the condition, and symptoms, over time. Patients often feel isolated, exhausted, misunderstood and anxious.
Mind the Gap is our new campaign aimed at providing much needed emotional and psychological support to the Neuroendocrine Cancer community. We need to raise at least £15,000 for the first part of this project to give patients one-to-one emotional support which is why we’re asking you ...to help us by holding a Bake for NETs.
The money you raise from your Bake for NETs will go directly to our MIND the Gap campaign to help support the emotional wellbeing of Neuroendocrine Cancer patients across the UK.
Sign up today ➡️ https://bit.ly/2VcmkYM
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If you’re affected by Neuroendocrine Cancer and would like to speak to someone about your finances then please get in touch with John.
John is a Neuroendocrine Cancer patient and the South East NET Natter Co-ordinator, and he has very kindly offered to use his professional expertise and skills as a Chartered Financial Planner to provide financial guidance to the Neuroendocrine Cancer community.
If you’d like to find out more and get in touch with John then please visit our website ➡️ https://bit.ly/2Ux2Ul8

SOUTH WALES SUPPORT GROUP INFORMATION❤️
We hold local support group meetings across the UK which offer an opportunity to meet others in your area who are affected by Neuroendocrine Cancer.
Our next NET Natter support group in Swansea is coming up.
... 📆 Friday 3rd May 🕔 13:30 - 15:00 📍 Maggies Centre – Singleton Hospital
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Did you know, every time you shop online you could raise FREE donations for us? It takes 2 minutes to sign up to Give as you Live, and they'll turn a percentage of everything you buy via their site into a donation to us!
Get started ➡️www.giveasyoulive.com/join/netpatie ntfoundation…

Top draw helped me since its infancy. Amazing team and great support. What they don't know about NETS now is not worth knowing. They are a small team but do an amazing job and are a great team and organisers together. Keep going and thank you for your dear support over the last ten years. You are all stars especially Catherine BOUVIER who has helped me personally cope with NETS over the last ten years. Thank you to you all. Don't stop now your reputation and respect is growing daily as a place to go for help, lots of information and advice xxx.

The Net patient foundation have been a great support and it is because of such a great team of specialists that a lot of people are still here and fighting. The stories on the patient foundation group are an inspiration to us all.

Representing NET patients at the Britain Against Cancer conference in London today. Thanks to the NET Patient Foundation for the kind invitation x

Always helpful, friendly and knowledgeable . Cathy helped me so much when I was first diagnosed and she and her team have continued to produce wonderfully helpful materials and provide real support.